It was a gorgeous morning for the annual Great Strides Walk to Cure Cystic Fibrosis along the North Shore. It is an event the children and I have participated in before and it is truly incredible to see how much it continues to grow each year!
We first became involved with the walk as friends of ours have children in their family with cystic fibrosis. Jackie and Casey have two young boys who were diagnosed in 2005 with the genetic disease that primarily affects the lungs and digestive system. They are known in this area as the, “Mighty Magners,” plus several hundred of their family and friends.
Since their diagnosis, so much progress has been made with treatments. Now, the median lifespan has increased to 41 years old. And there is a cure for a mutation that affects 4% of the CF population.
The Magner’s sons, Jeff and Matthew, have a mutation that affects 70% of the CF population. The CEO of the Cystic Fibrosis Foundation told the Magner’s their boys should qualify for a trial in 3 years for a drug that stops the progression of Cystic Fibrosis. And these strides have been made through the support of events such as these walks where 90-cents of every dollar raised goes directly to research. Last year, this particular walk raise well over 300-thousand dollars and this year, that will likely be even more support for the CFF.
Be the change!
Amy Gregorio
You Mrs. International
www.cff.org
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